Case Study

Improving the therapeutic management of patients living with rare disease

Improving the therapeutic management of patients living with rare disease
Cello Health Communications


A small pharmaceutical company specializing in innovative transdermal delivery products within the sexual health and pain treatment areas



The client came to us with a question: “How can I generate belief in improving the current and future therapeutic management of patients living with a rare disease?”


We developed the ‘What if, What now?’ campaign to support the rare disease community in moving towards a future with improved outcomes for patients.
Our program:
• Gained advocacy from key European multidisciplinary stakeholders
• Generated clear and implementable resources in support of campaign vision and priorities
• Built awareness, confidence and belief within the wider a rare disease community and among healthcare decision makers around Europe


Convened and gained support from a steering group of 15 leading clinical and patient group representatives
Implemented survey of over 200 HCPs to assess unmet needs in a rare disease
Educational audit of all patient resources/materials offered across Europe (in collaboration with the steering group)
Development of educational content including videos, posters, and leaflets on TFR with ambition to translate into local language for dissemination across Europe
Development of consensus publication on standards of care and patient-physician conversation guides

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